More Uploads and NaNoWriMo

Hey my Lovelies!!!

I know, I know! I broke my promise...I took almost four months to post this time...*sigh*...what are you going to do with me...

Well...I should be posting more in the upcoming days!!! Maybe once or twice a week...wanna know why? Of course you do! Because you are a empty void who's whole purpose is to make me feel like I am being read when in actuality I only get a page read a day...so I send this to the empty internet hoping that someone will come across my blog and red it to find my self being tortured of my own freewill and at my hand.

I am going to tell you my news Julie Powell style because I just watched the movie Julie and Julia and I love the way she did it...so here goes.

"The Challenge: NaNoWriMo
Write 50,000 words in no more than thirty days, starting November 1st, while trying to keep your wits about you as you deal with homework, jobs, chores, Thanksgiving, cleaning up Halloween, losing weight from the Great Halloween Candy Pig Out, and making sure to post those pictures you promised for your NaNoWriMo facebook group.

The Goal: 1,667
Write 1,667 words everyday to reach your goal and you could actually reach 50,000 words in thirty days...well...if you stick to that regiment then you will do 50,010 words, but that's a technicality.

The Contender: Leighanne Clitheroe
A young woman in the middle of her Senior year in High school, age 17, brown hair, blue eyes, five foot six and a half, which just so happens to be an inch taller then her mother. She writes for fun, stress relief, and a lot of times, escape. The first year she tried this horrendously challenging feat of literary talent she only reached 5,000 words. She took a break for two years before coming back determined to beat this challenge given to her by will power alone. Sadly her will power failed her and she only wrote 10,000 words. She came back the next year determined to finish in NaNoWriMo 2011.
This was by far her best year Leighanne says of her success. "I managed to write 25,123 words which is more than the previous two years combined! I may not have officially won according to the website's rules, but I feel like I won and all of my NaNoWriMo friends agree." She also says that she believes she can reach the 50,000 word goal this year as long as she focuses on the task at hand; cleaning up the house. "Yes, yes I know, why does the house affect my writing? Well when you've been neglecting the house since the start of the year and your mother tells you get it clean or no NaNoWriMo this year...you want to get it clean!"

Will Leighanne reach her goal? Will she clean the house? Will she stop talking like a news reporter talking in third person? Will she finally learn to stop biting her nails?

Find out as we follow her through her Adventures Through Nano-ing! (coming soon to a computer or laptop near you!)"

Okay so now you know my good news!! Question though...did any of you read that in a news announcer or theatrical trailer voice??? While I was writing it I started to feel like Amanda from the Holiday when the voice starts portraying her life like a movie....Well I guess that's what happens when you become a writer.....you star hearing voices and going just a smidgen crazy!!! But then again what writer isn't crazy in one form or another!!!!

Toodle-lee-doo!!! I have work to do!!!

Long Time, No Post

Hey my Lovelies!!!!
Long time, no post!!!!
Okay so much has happened since the Titanic anniversary.....lets see here......
Last week of April:
Found a new site and I'm putting my books on it......some of you may even be reading this because I put the website link on my profile page....... Hello fellow Wattpad people!!!!!
May:
Finished up with my essay part of the Exegetical project.......then found out our final was telling the class about our prophet.......yay.
Made many new friends at my high school.
Had many sleepovers with Fallon....one consisting of me staying for four days cause of some family troubles and she needed me as a shoulder for her.
Rode in the cab of a steam train!
Did the presentation for the Exegetical paper and finished with Junior year!!!!!!
June:
More sleepovers with Fallon.
Finished home school!
Started summer home school. =(
Went to the beach and got a small sun burn where I couldn't reach with sun tan lotion.
Went to a little girls B-day party on the 23rd and was held hostage and dumped into the pool of an inflatable water slide and got a giant lobster red sunburn across my shoulder blades.
Went to Disneyland the next day with my 'Fraternal Twin Sister from Anotha Motha,' Madeleine.......pic below......and got kidnapped by the guy in the picture to surprise Maddie. I was in the wheel chair and we were inside the store next to the pirates of the Caribbean ride. I saw a cute shirt and asked Maddie to see how much it was. out of the corner of my eye I see Branden coming in a crouch/run with a finger to his lips to keep me quiet. He comes and grabs the wheelchair and all Maddie sees is me being wheeled away by some one else, while I laugh my head off. We stop outside the gumbo place and Branden turns around making Madeleine screech in happiness since they hadn't seen each other since 4th grade. most rides were terrible though cuz of the sunburn and cars land was awesome!!!!! and every third blink IS slower!!!!!!!
Wednesday I had the last sleepover for a while with Fallon.
Thursday night I find my Broviac won't flush and I spend the night in the ER at CHLA
Friday afternoon I find out that the Broviac has died and I will need to go into surgery to get it out. Friday night I came home with a plan.
The plan is this. Tomorrow (Monday) I go in and get a PIC line cause that's the only way my camp will let me come. Tuesday I go to the Painted Turtle Camp's Special Diagnosis Session from July 3rd to July 7th. I will then leave camp and go to the hospital (if i leave from camp and go straight there or go home for a day and then go I don't know but hey i technically should already have had the surgery...they're bending the rules so I can go to camp first.) and get the Broviac and PIC line out.
June 30th was my Dad's 59th B-day and July 6th is my 17th B-day!!!!! I will be at camp for the 4th of July and my B-day!!!!!
Okay long post over!!!! I promise not to wait so long next time before I post!!!! Wish me luck with the Surgery!!!!!! See you later my Lovelies!!!!
(website mentioned above: www.wattpad.com)
(pic I promised above, below this)

Maddie(Madeleine[blond]), Me(In Wheelchair....in reality I'm two inches taller than Maddie[brunette]), and B(Branden[Male]) in line for the new Cars racing ride at Disneyland.

Titanic's Hundreth Anniversary

Titanic.
Greatly argued to be the biggest maritime disaster in history.
She can never sink they said...but in fact she could. She could stay afloat with any four of her water tight bulkheads flooded.
At 11:42pm on April 14, 1912 Titanic hit...... an iceberg which ripped the hull from the first to the fifth bulkhead sealing its doom.
At this time...2:20am titanic sank beneath the waves...not to be seen for 73 years.
Today we honor the lives lost, and lives permanently changed by this loss. — at 49 56' 49" W 41 43' 32" N.

Quotes--Part 1

C.S. Lewis:
Christianity, if false, is of no importance, and if true, of infinite importance. The only thing it cannot be is moderately important.
Experience: The most brutal of teachers. But you learn, my God do you learn.
I believe in Christianity as I believe that the sun has risen: not only because I see it, but because by it I see everything else.
Lets pray that the human race never escapes from earth to spread its iniquity elsewhere.
The future is something which everyone reaches at the rate of 60 minutes an hour, whatever he does, whoever he is.
You are never to old to set another goal or dream a new dream.
If I find in myself a desire which no experience in this world can satisfy, the most probable explanation is that I was made for another world.

I will be making a series of this....one author for the multitude of quotes i will give....but I leave you with one from a different author...one of my favorites...There is something delicious about writing those first few words of a story. You never quite know where they'll take you. -Beatrix Potter

Friday the 13th.......O.O and Paul Newman

I love fridays, but I love Friday the 13ths better!!!

Something good always happens to me...today me and my neighbor are going to watch "Message In A Bottle" starring Paul Newman. And it is raining....something I love....and get good luck in......so now I have doubly good luck!!!! I feel bad for the people who get bad luck though....our gardeners came and did our yard and half way through it started pouring rain......they were soaked to the bone in 5 minutes.
So far nothing bad has happened to me but there is always room for that to happen. For instance my neighbor just called me saying she can't watch the movie with me she has to go to her shop......but we will watch it some other day.....in the meantime I will watch "The Sting" another Paul Newman movie.

So why the fascination with Paul Newman you might ask??? Well I am a medical kid and I cant go to camp...that is a normal camp. Paul Newman saw that there were many kids throughout the US that had medical disorders that kept them from going to camp. He decided to help. He created "The Hole in the Wall" camp. It enabled kids to go to camp free of charge and be around a full medical staff and do things that they normally wouldn't be able to do.

Last year I went to the Painted Turtle...it is another Hole in the wall camp 40 miles north of Los Angeles. It was fabulous!!! I had the best time...made many new friends and did things I never would have done elsewhere. I have a phobia of rope ladders and tightropes because there flimsy and they add on to my fear of falling. They had a high ropes course and that's what we did the first day. I had known one of the guys volunteering, from my hospital and his name is Pun, and he knew of my fear and what time I'd be doing the high ropes. He came and encouraged me while I did it...he kept saying " look a pi in the sky!!!" (we had decided my name for the week was 3.14159265, the first few digits of pi) Pun helped me across the tight rope and gave me a big hug when I came down.

I have signed up for the camp again this summer from July 3-7...over the fourth and my birthday! Well that is it for this text I have 25 min to clean up the kitchen or I'm in trouble.

TTYLXOX!!!!!!!!

Blog Scares and Sleepovers

So right now I'm on Easter Break....very uneventful until last night when my BFFL Fallon came for a sleepover. We did the classics...watched movies, ate junk food, stayed up way past midnight, and slept in till noon. Her dog Princess came and it was hilarious watching that little Chihuahua charge the glass window looking into my back yard barking her head off all because of a raccoons and possums......

As soon as she left we started texting....I went and chatted with my neighbor and she let me use her treadmill....we continued texting even as I write this we're texting. We are talking about our blogs and we each decide to check the others out...then she tells me that she can't find my blog. It takes me about 15 minutes to figure things out but I finally get it back online. I was freaking out....I even posted about it on my face book like page.....it was very stressful...... well time to go make my tumblr as I promised Fallon I would!!! ttylxox!!!

Dancing Girl

Ah what fun this week has been...I went to a dance with a great guy and we hung out with some great friends of mine and they swapped numbers! That made me super happy. Then I worked at the local little leagues snack bar and earned $23 and a blue powerade! I know, I know....that's not even minimum wage but I kinda don't care seeing as I get free food while working and I'm doing something I love plus I have worked for the lady since i was 8...she has been like a second grandma for me!.....the downside to this weekend...my arm is super sore from playing to much air hockey at the dance and then after I worked I was ready for my legs and feet to be chopped of and returned when they stop hurting. Oh well its was so much fun that stuff hasn't dampened my mood!!! okay well i think that is it for now...I'm still tired.
Bbbbbbbbyyyyyyyyeeeeeeeee!!!!!!!!!!!! (translation: bye)

The Oscar's Quick Post

Okay I am just doing a fast post today.....the past couple of days were pretty normal.....Friday: I woke up, let my dad out through the garage (he refuses to grab one of the garage door openers), laid around all day watching the first season of Gilmore Girls on DVD......I also got a call from my dad saying that my Grandma Poppy had another stroke during the night...my Uncle Chip noticed that the left side of her face was sagging a little......a very noticeable sign of stroke. She is doing great and she hopes to be out in time for The Oscar's tonight. Saturday: My brother starts playing basketball in his room and wakes me up.....I look at the time and see I'm running late for my "job." So I get ready and ride my scooter down to Seaview Little League and work at the Snack Shack for 4 hours. I then spent the rest of the day watching tv and reading my book for homework. Today: I wake up and realize that its Sunday....my feet still ache from yesterday so I decide to sleep some more...of course my dad calls a second later to ask if I want to go to sugar shack.....that was enough to wake me up!!! He asks me to tell my bro to wake up.....personally it was a mistake....we get to the restaurant and we are waiting.....i tell him about the marathon from a week ago and he isn't very enthusiastic....so i ask him if he watches Grey's Anatomy....I'm not gonna tell you what he said....bottom line he said he wouldn't even like Chandra Wilson because of what my dad did. his reason for not liking even Chandra was my dad made him watch the show when the office came on....that I'm okay with hes upset about a show....but what he said before and elaborated on after was what hurt. first he said that he doesn't care about Chandra or my disorder because what he has to say was more traumatic....after he said....your disorder is nothing compared to this.
I know what your thinking I'm soft i can't take a joke....well for all those people with this disorder imagine every day you see your sibling parents or best friend they dis you and your disorder....if you have just recently been diagnosed then you remember being told your crazy....or that your disorder is lady troubles or that it is nothing and it will go away come back if it gets worse......my brother has said so much about my disorder in what he thinks a joke but it really hurts because to me it says i don't care.....
okay enough about my brother......the Oscars tonight were amazing!!!!! I am glad Meryl Streep got the Award!!!!! oh and little note Meryl in all three wins you wore gold.......WEAR GOLD! okay quick post done!!!! and just like Billy Crystal's opening song this was not done by Martin Scorsese because there was no blood!!!!!
Have a good night!!!!

Internet Rants & Ribbons

Ah Wednesday's......the one day of the week where i have no clue what to do with myself. so i guess i'll blog about the internet. it can be a little weird blogging you never know if anyone reads it...i keep telling my friends to check it out so that they can help me spread the word on mitochondrial disease......but they only seem to be liking the like page on face book and not checking out the blog. on that like page in the info i put both the site and the email i use for the blog but i never know who looks at it...they say the internet makes us able to connect with each other more. but we can't tell if someone is being sarcastic or funny so we could take things meant to be funny the wrong way. and when someone reacts to something they have to type it out with a "lol" or a "=)" emote. we can't see the other persons face...but then again they half solved that problem too.

they invented the web cam...sure we see the other person but then the connection could be bad or if the lighting is in a weird spot the entire screen goes basically black and you can't see much of the other person. or the internet could have a cutout and the call goes dead completely...it can be hard to keep connected...i doubt we have any more than 15 friends that we see on a regular basis out side of work or the family. the internet has basically made us virtual shut ins...we can stay in the house in our pj's for ever...we can know do jobs, shopping, school, bills, and basically everything you can do out of the house you can now do in. i guess that's okay for people who are allergic to the sun or air, but what about you...would you rather see everything through the internet or go and do it yourself?

Okay that has been bugging me forever...........had to get that outta the way. So if you happen to be reading this blog....let me know by responding to what I say below so I know I'm not crazy for talking to an empty wall.........okay well time to get to the mito portion of the blog. I have had a random need to go find out what ribbon color a disease corresponds to and low and behold I found a couple ribbons that correspond to me.....and here they are......

1. Red = DARE, Love
2. Yellow = Our Troops, Spina Bifida
3. Green = MITOCHONDRIAL DISORDER!!!!!!!, save the earth, go green, recycling
4. Blue = Dysautonomia, Chronic Fatigue Syndrome, Cyclic Vomitting Syndrome
5. Purple = 9/11 Victims, Cystic Fibrosis, Cancer Survivor
6. Gray = Diabetes, Asthma, Allergies
7. Lime Green = Muscular Dystrophy
8. Burgundy (Maroon) = Headaches and Migraines, Children Undiagnosed or Misdiagnosed with Rare Disorders or Diseases
9. Pink = Breast Cancer
10. Pale Yellow = Spina Bifida
11. Fushia (magenta) = Pro-Life
12. Baby Pink and Baby Blue = SIDS
13. Purple Ribbon w/ Red Rose = Cystic Fibrosis
14. Purple Ribbon w/ Red Stripe = Chronic Migraine Awareness

Find out which ribbons apply to you and post below or on my face book like page! here is the website: http://www.craftsnscraps.com/jewelry/ribbons.html
I hope to hear from you!!!!

Inaugural Rock and Roll Pasadena Half Marathon Weekend

Omg i am so tired.......probalbly not a good idea to post tired but oh well....im completly ignoring spelling and gramtical errors this post because of it.......get over it.............
it is now 10:28pm and last night i got to bed at 11:30pm just to wake up again at 5am
it has been a tiring and eventful day.
for the people who live near the rose bowl you might know what happened today....how did you guys like the traffic? Today was the Inaugural Rock and Roll Pasadena Marathon, Half Marathon benifitng CureMito......YAY!!!!!!!!!for a inaugural run it was incredible impressive......it drove me to tears while i was in the traffic for parking spots....i was told that there were over 7000 runners, a speculated amount of double the spectators, and over $100,000 dollars raised by the runners to go to CureMito to fund research.
it was amazing.....but i think you have to see the pictures to understand.............thats right people this is a mass picture blog post.
Lets start at the expo which went on friday and saturday

 

This one is of the CureMito merchindise

 

This is of Dr. Richard Boles and his three kids Phillp (oldest), Henry (middle) and Caroline (youngest) and if i remember correctly Henry and Caroline both have mild forms of Mitochondrial Disorders......but then again it is 10:38pm

 

And this is the banner that was in front of the booth

Now lets go to the pasta dinner saturday night before the race

 

This was one of the three shown in front of the stage

 

Thats me and my friend (who also has mito) Carrie

 

Thats me and Chandra Wilson of Grey's Anatomy....her daughter has a mitochondrial disease and she has become the spokes person for CureMito

 

This is me with my daddy......i believe it was his first time going to something like this and seeing me have to answer questions.....he would have seen my do a speech but they cut that from the evenings festivities.......

 

and this is a second one of the ones that were in front of the stage

You still with me???? Good now its on to race day!!!!

 

Here is a close up on the CureMito Reusable Bag

  

Here is the CureMito Beach Ball (signed by Sugar Ray for my friend Carrie and her Brother Connor)

  

This was actually taken at the expo but it was put in my race day collection before i found that out.....It is now 11:00pm.....i offically don't care

 

This is my friend Carrie with Sugar Ray

 

This is Me and my Mom with Sugar Ray

 

Sugar Ray is holding up a T-shirt and 2 balls all with the Cure Mito logo on them!!!

 

Me and my Mom Backstage before Sugar Ray goes on to play for the runners who've already gotten back

 

This is Carrie's Mom and she is telling Mark about Mito while he signs the Beach Ball

 

Mark with the Wheelchair Winners (these people all need wheelchairs and the lady [her name is sandi] has one over 50 races with her special racing chair)

 

The Winners

Mark raising his glass to those who ran

 

I really wanted a pic with him in the background and it turned out epic

 

At the end of the day they got most of the CureMito people together for a group photo.....can you find waldo???(aka me)

Soon days with this much excitment it makes it hard for me to sleep.....i just hope its soon because otherwise i will pass out......im running on 5 hours sleep and 18 hours of being awake.....6 more hours and will have gone 24 with 5 hours sleep............not good for mito kids..........you other mito kids know exactly what i mean....................okay it is officially 11:08....................lets see if i can sleep now.............other wise im gonna have a midnight blog blast............(i dont even know what that means) computer off....lights off............sleep mask on..............night!!!!!!!!!

My First Blog!

Omg this is my first blog...well i guess i should start with a little something about me...

I am a average American teenage girl. I want things that American girls want, but i also want things that most wouldn't need to want...I want a cure. I have a Mitochondrial disorder hence the name of the blog. My name is Leighanne and all I really want is to raise awareness for mitochondrial disorders and for a great foundation just starting to dig its heels into the ground, CureMito, it is run by mito families and by my fabulous doctor Richard Boles, A pioneer in his field. Not many things are known about this disease but here are a couple facts about it;

1. Its a common cause of strokes and seizures in children.
2. A Mitochondrial component in Autism is becoming increasingly apparent.
3. The vast majority of people with Mitochondrial Disorders have yet to be diagnosed.
4. Mitochondrial Disease is more common than Muscular Dystrophy, Cystic Fibrosis, and Sickle Cell.
5. Mitochondrial Disorders are more prevalent than all childhood cancers combined.

It can be hard sometimes. I can't go to school like other kids. I take a couple classes on campus and then I do the rest through Medical Home Schooling where a teacher comes to the house. I get tired really easy, I get migraines that hurt so much they blind me for anywhere between a couple seconds to a couple minutes. I could start throwing up and I won't stop, (I could throw up everything but I'd still be heaving like I was throwing up), until I'm in the hospital getting a thing called D10.....that is stuff I can handle though.

What's really hard is no one can ever really know what you are going through. My mom who has been with me through every hospital admission says she understands because she goes through it to. but she doesn't go through it like I do, she is in the "protective mother worrying about her kid" side of it, whereas I'm actually going through it all. My friends try but they never fully get what I'm saying.

So that is why I created this blog so I can vent about my disorder, shed some light on it, and I hope to find others with this disorder or help others who haven't been diagnosed but have many symptoms of this disorder. I hope to make a difference.

Well I guess that concludes this post. Keep it Real, Keep it Fun, and Spread the Word!